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objectives of ifxs

The objectives of the Irish Fragile X Society are to: Promote awareness of Fragile X Syndrome, the cognitive and behavioural difficulties associated with the syndrome, the likely impact on individuals and their families, and good practice in meeting their special needs.

Provide support for the families caring for Fragile X sufferers. Provide an organisational focus to represent at a national level the special needs and interests of those suffering from Fragile X. Gather and disseminate current information regarding Fragile X and the treatment of its symptoms.

www.eurordis.org