Parents and Irish Fragile X Society members Maria Panza, Sheila Mac Nally and Colm Mac an Iomaire speak about their Fragile X journey. "A diagnosis isn't the end of the world though it can feel like it at the time and can take time to come to terms with".
The article was published in the Independent on 8 November.
If you are affected by the contents of the article and wish to contact the society you can do so by sending an email to fragilexireland@gmail.com (we are currently experiencing difficulties with our email address info@fragilex-ireland.org but you can also use our contact form on the website).