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Headlines ... Annual Seminar for parents and AGM of the Irish Fragile X Society on Saturday 19 April 2008 Resource for parents and teachers. Check out this website with free educational computer programs
Seminar on hyperarousal in Fragile X syndrome for special education teachers and service providers by Dr Vicki Sudhalter Friday 18 April 2008, 16.00-18.00 Dr Vicki Sudhalter is a foremost researcher in the area of hyperarousal in Fragile X syndrome. Adults and children affected by Fragile X syndrome (FXS) experience an inability to control their levels of arousal (caused by social or environmental stimuli) resulting in a state of hyperarousal and behaviours from mild anxious responses to extreme tantrum behaviour. The social situations that can cause hyperarousal include a change in routine or direct eye contact with strangers. Environmental stimuli include over stimulation of sensory inputs from loud sounds, bright flashing lights and visually complex or crowded environments. Hyperarousal together with hyperactivity occurs in 70-90% of boys and 30-50% of girls with FXS. The outbursts that are driven by hyperarousal and anxiety can occur at home, in school or in placements with service providers. Understanding what triggers these outbursts and managing them with a 'sensory diet' and other approaches is critical for all who want to get the best out of every day for persons affected by FXS. During this seminar Dr Sudhalter will discuss hyperarousal and suggest appropriate management techniques. She will also discuss what should and should not be on an IEP for an FXS student. This seminar is free to all special education teachers and service providers. However, places are limited to 50, so please register in advance by e-mailing info@fragilex-ireland.org. We look forward to seeing you on Friday.
Annual Seminar (with Dr Vicki SUdhalter and Colin Reilly) and AGM of the Irish Fragile X Society on Saturday 19 April 2008 The Irish Fragile X Society is pleased to invite members to its Annual Seminar for parents and afterwards its AGM, which will be held on Saturday, 19 April 2008, from 10.00 a.m. until 3.30 p.m. in the Lecture Theatre of No. 45 Merrion Square, Dublin 2. The seminar is entitled 'Hyperarousal in Fragile X Syndrome'. We are delighted to announce that the speakers will be Dr Vicki Sudhalter and Mr Colin Reilly. Dr Sudhalter is a foremost researcher in the area of hyperarousal in Fragile X syndrome and Mr Reilly is an educational psychologist working with St Michael's House who has a special interest in Fragile X syndrome and has carried out research on Fragile X syndrome in Ireland. Adults and children affected by Fragile X syndrome (FXS) experience an inability to control their levels of arousal (caused by social or environmental stimuli) resulting in a state of hyperarousal and behaviours from mild anxious responses to extreme tantrum behaviour. The social situations that can cause hyperarousal include a change in routine or direct eye contact with strangers. Environmental stimuli include over stimulation of sensory inputs from loud sounds, bright flashing lights and visually complex or crowded environments. Hyperarousal together with hyperactivity occurs in 70-90% of boys and 30-50% of girls with FXS. The outbursts that are driven by hyperarousal and anxiety can occur at home, in school or in placements with service providers. Understanding what triggers these outbursts and managing them with a 'sensory diet' and other approaches is very important. In the morning, Dr Sudhalter will describe hyperarousal and suggest important ways to manage the challenging behaviour that can result from these anxiety-driven outbursts. After lunch Vicki Sudhalter and Colin Reilly will conduct an open workshop to answer any queries you might have about hyperarousal or issues relating to IEPs. The meeting will be followed by the AGM at which officers of the society and a management committee will be elected. This seminar is free, but places are limited to 50, so please confirm your attendance in advance by sending an e-mail to info@fragilex-ireland.org. Registration is between 10.00 and 10.30 a.m. A light lunch will be provided.
The following are the objectives of the Irish Fragile X Society: To promote awareness of Fragile X syndrome, the cognitive and behavioural difficulties associated with the syndrome, the likely impact on individuals and their families, and good practice in meeting their special needs. To provide support for the families caring for Fragile X sufferers. To provide an organisational focus to represent the special needs and interests of those suffering from Fragile X at a national level. To gather and disseminate current information regarding Fragile X and the treatment of its symptoms. While all reasonable precautions have been taken to ensure that the information in these pages is accurate and that all sources have been appropriately acknowledged, the Society disclaims any responsibility for errors and omissions. |